Monday, September 29, 2014

Week 4 July 9th - July 15th

Week 4  July 9th - July 15th

Day 22 
Wed. July 9th
5:30 am
Chase Update:
Happy 16th Birthday Chase!

Today is week 4 or day 22 since the accident......or 3 lifetimes for us.
I'm pretty sure Chase is detoxing right now. He's sweating profusely, and cannot stop moving his legs and arms. He won't sleep, and he is miserable, but not in pain.
He has been living on opiates, barbiturates, and other pain medicines for 3 weeks now, so it's pretty brutal.
He is heading down to get a CT scan to ensure the swelling is staying down, which means more drugs to get him to hold still. 
Television seems to be the only thing that calms him. This is another reason I think he is detoxing. Distraction makes his legs and arms move less.
If everything goes as planned Chase will get to breath on his own for a while. Fingers crossed!
I have hesitated to open an account for people to donate money for Chase's medical bills, but after talking to the rehab representative I realized how much the insurance company doesn't cover.
I would really appreciate it if you would share the link.
We still need your prayers more than your money so don't you dare apologize or feel bad if you don't have the ability to give a monetary blessing. The Lord will provide a way.
Today we pray that Chase will excel with his breathing, and that his lungs continue to clear and heal. We pray his body can be calm and he will be able to rest a little more as he tries to overcome the effects of the drugs he has been inundated with.
Please pray Chase will be able to continue is astounding progress, that he can continue to be a witness of God's power and mercy. All this we pray for in accordance to the will of our Heavenly Father.
We pray he blesses you for part in this healing journey, thank you for your service, your love, and your prayers. Phil & I have never felt more loved!
May god bless you and keep you until we meet again. We are legion!


 Some of Chases Birthday Visitors

6:45pm
Chase Update:
Chase was finally able to rest today. His legs were restless and he was sweating until about 8 this morning. Then he puked everywhere later in the day. Now he is sleeping great. We hope the worst of the detox is behind us. Days of watching helplessly is horrible.
They took him off the vent and let him breathe on his own for over 10 min today. He did well but it's a really fast shallow breathe. We will work up to it.
We celebrated chases birthday with cake and good friends. Some of the nurses and his Dr. Came in and sang happy birthday with us. He even got some presents.
We started a gofundme account today for Chase today. Thank you for loving my son! Your birthday donations are helping us with the alarming bills that are not covered by insurance.We are overwhelmed by the generosity of friends, family, and strangers.
Now that Chase has (hopefully)detoxed from the medicine they pumped into him, I can't wait to see if he is cognitive tomorrow.
Tonight we ask you to pray Chase can be free from the effects of the medication he was on, that his lungs can heal quickly, and be strong enough to wean off the ventilator. We thank The Lord for all the prayers, visits, monetary gifts, and acts of service that have been done in our families name. All this we ask in accordance to God's will. May God bless you and keep you until we meet again. We are legion.

A few of the Happy Birthday Wishes Chase received!


Day 23 
Thurs. July 10th
7:30 am
Kami Update:
Chase is back to the leg thrashing and sweating buckets. Boohoo! Poor kid. I'm so grateful I got to sleep through the night. (Thank mom & Phil) Being tired on top of watching your baby suffer is unbearable. 
These last few days in the ICU waiting room have been so hard. A lot of people in anguish and pain, and I can't ease it. People won't be comforted by us as well now because our son is getting better. All I can do is pray for them. It's such a helpless feeling. Then I remembered that many of you are in the same situation. You want to help us, ease our burdens, and all you can do is pray.
My attitude changed instantly.
ALL I could do was pray? Had I not just experienced miracles in my life over and over because of the fervent prayers of loved ones and strangers?
Had I not literally felt those prayers?
The hope it gives me when Someone says they are praying for me and my family is exhilarating, and it confirms we are not forgotten.
So I will change it to EVERYTHING I can do is pray! I am giving my all, and enlisting the help of The Lord in my endeavors. My Prayers are a vocal cry for The Lord's army to surround them with comfort, and if it be His will, to heal.
Thank you for sharing our gofundme page yesterday. We are so overwhelmed by the outpouring we received. I didn't even recognize half the names of the people who donated.
Chases birthday was pretty great! He had some if his friends come down last night. Is was good to see them. They had a lot of questions about his recovery process, and I tried to answer them as best I could. Most of the answers with TBI at this stage is - We don't know yet.
However my faith in Chase and My Heavenly Father helps me to know, that the fight we have coming next is going to be unbelievable.
Do I think my son will be able to speak again after the doctor said he probably won't. Oh yes!
The Lord promised to make him whole, and a Chase who can't speak or sing is definitely not whole. We know he will never be the exact same Chase, heck he might even be a better version of Chase, He would argue the impossibility of that.
"Stop trying to per-fect perfection Mom" lol
Miss him, I now understand how you can miss someone when they are in the same room as you. Please connect with your loved ones today! Really stop and look at them, revel in the amazing things that make them important to you. It's a tragedy to spend our lives next to people, and not connect with them.
I miss my Chase. I miss him hugging me, kissing my head, and saying "I love you my little mommy" I miss him crawling into bed with me in the morning to connect with me, because he worked all day and I worked at night.... I miss Chick flicks with him, where he came for the free movie and popcorn, but then spent the whole movie telling me it was inappropriate for him. Too much estrogen! 
I miss that look he gets right before he does or says something that will annoy you and make you smile or laugh in equal proportions. He can make you feel beautiful, special, and important, in an effortless way. He can also be the most annoying person on the planet. He has a gift. He is able to push anyone's buttons!
I think it's time to Wake Up Chase! We need to wake his brain up.
Today we pray that Chase can be cognitive on a regular basis, we pray that he can excel at being off the ventilator, that his lungs will be healed, and that he will be able to cap the trach so he can speak to us soon! We ask for miracles for us and for Justin and his family! I believe the Lord loves to bless us. Just look at these last 3 weeks. It's been a thousand blessing disguised as a near tragedy. So we ask for these amazing miracles, if they are The Lord's will.
We pray for all of you experiencing your own heart wrenching moments. You are all our miracle! Thank you for loving us, and for fighting with us.
May God bless you and keep you until we meet again. God is good. We are Legion!

8:00 pm
Chase Update:
Are you ready??????
Miracle number 1- Chase's lungs are almost clear and he has been off the ventilator since 9:10 am today. Amazing! They will probably want to put him back on for a while so his lungs don't stress, but we'll see.
Miracle number 2 - Chase was able to express pain on his face today after being in the chair for too long. 
Miracle number 3- I put a wash cloth over his eyes today, and he reached his hand up a few inches like he wanted to get it off. I took it off for a second and then did it again- same response. Wahooooooo!
His sweating and kicking decreased slowly as the day progressed, so we are getting closer to beating the withdrawals. It was such a blessing that he had a bit of a reprieve on his birthday yesterday.
The only cloudy spot in my otherwise brilliant day was hearing that some people had been negative to the driver and owner of the semi Chase hit. I want this to be very clear. My son lost control of the vehicle he was driving, and crossed into oncoming traffic totaling both vehicles. Chase was 100% at fault, and it was an ACCIDENT, My heart and soul ache for the driver and the truck owner as they deal with the financial and emotional fallout of the accident.
Please pray for their burdens to be light. Pray that the insurance company will swiftly complete the claim, so they can get back to work and making a living. Please Keep Praying to Wake up Chase! I can't wait until he knows me all the time.
What did you do today to connect more with those you love?
May Our Father in Heaven bless you and keep you until we meet again. We are Legion!
11:00 pm
Phil Update:
Well he is sleeping like a baby. If we get 3 or 4 hours like this he will be able to do a lot more breathing therapy tomorrow. He is still breathing with out a respirator and seems to be doing fine. He is a miracle. Kami and Tonya Desormeaux decided to go shopping and I felt like going to Scheels so I tagged along. Well I was done with Scheels in 5 min. Kami informed me they were going to be at least 2 hours so I went to transformers 3D. Have to say I'm not a huge 3D but that in 3D was worth seeing. Lots of metal crushing mayhem. When we got back I came over here and have spent the last 5 hours with Chase. He is such a good mannered young man. He is very reserve never talks back or bad about anyone. He is very agreeable. He is willing to watch whatever I want to watch on tv and never complains. He is so easy to love. - LOL

Sweating from withdrawls!

Day 24
Fri. July 11th
10:15 am
Chase Update:
Chase has officially been off the ventilator for over 24hrs. 
Hallelujah!
He is doing amazing. His numbers look good all around.
They are putting him back on tube feelings today. He was taken off after a vomiting incident Wednesday evening.
He moves his mouth a lot now, but no smiles yet. Still it's amazing to see.
In order to get into the rehab facility he has to be more cognitive and be able to follow commands. Which he doesn't do now......or before the accident! 
So today we pray for him to be able to communicate, we pray he will be able to follow commands like lifting an arm, or squeezing my hand. We pray for his overall health and healing, and that the doctor will be guided when it comes to his care and medications. Please pray for Justin, that he will make great strides today. We ask these things according to the will of The Lord.
May this day be full of joy from all the small and simple things. May you find beauty in a quiet moment, or a quiet moment amidst the chaos. May The Lord God bless you and keep you until we meet again
We are Legion!

Day 25
Saturday. July 12th
11:15 am
Chase Update:
I woke up with that excited energy again. Not sure what going to happen, but something amazing in the next few days. Can't wait to see it unfold.
As of 9:10 am today Chase has been off the ventilator for 48 hours. Amazing!
There has been talk of moving us to the PCU upstairs. That stands for progressive care unit, and it's a step down from the ICU. It has it's pros and cons. The downside is that it is a 1-3 nurse to patient ration, but it also means we are stable. Like stable - stable  hallelujah! Also I can take pictures without getting in trouble. That will ease my rule following soul.
Chase was able to go off another drug and they decreased the dosage on another yesterday. Only 6 more to go.
Chase had a rough night with me last night. His heart rate, blood pressure and fever were moderately high. He was restless, and agitated. Now Phil is with him so of course his numbers are all low, and he is chilling and watching tv. I'm starting to think I may not be his most favorite person in the world. Rude!
Phil probably isn't his favorite right now either. He has been trying to get Chase to interact with him and he is getting mad. It's an amazing thing to see him emote.
My 4 other kids have been in Williston most of this week, and I am excited to have them back, but I am also exhausted and worried I won't be able to give them the attention they need.
Chase woke up in my dream last night, I knew I was dreaming because he was talking through his trach so I just enjoyed spending time with him while I could. It was great to have him back for a while.
Today we still pray for him to Wake up! I am asking The Lord to do it in his own time, but I will still keep praying for it daily. We pray his lungs keep getting stronger. I could really use a hand squeeze from him today, and have him look at me for more than a second with recognition. So that is my prayer. Please join us in praying for Chases healing according to The Lord's will, and for our patience to defer to it. We pray you will have your own miracles today, whether it's a few minutes of snuggle time with your babies, or an unexpected blessing. We pray that God show his hand in your life today, and that you are able to recognize it.
Thank you for being you, for sharing our burdens and making them lighter. May The Lord God bless you and keep you until we meet again? We are Legion!
7:30 pm
Guess who graduated to the PCU!
Guess who graduated to the PCU!

 9:00 pm
Chase Update:
Well we graduated to the PCU tonight. The two youngest are so excited to be able to spend time with him now. It nice to be together as a family again.
Chase did not like moving to a new room. How do we know? He was holding our hands and squeezing them tight! Amazing,
He really likes having his Dad around. I don't know if he recognizes him,or if he just decided he was safe. He watches him and he got wide eyed and nervous when he was getting ready to leave the room tonight.
Tonight we thank The Lord for the miracle of having Chase hold our hands. We praise The Lord for healing him so we could leave the ICU. We pray that The Lord keeps his progress going so that we can go to the rehab center soon. We pray for our friend Justin, that he may defy the odds, and be healed. We pray for so many of our friends who have had illness and disaster strike them in the last few weeks. We love you all. We bless your names when we speak to our Heavenly Father. We are constantly in awe of the blessings and support that have been showered on us. Thank you,
May god bless you and keep you until we meet again.We are Legion!

11:45 pm
Phil Update:
 My daughter Alora, wanted to spend the evening with me and Chase. It was fun hearing about girls camp and the other events in her life. Kami has a migraine and can't sleep. I arrived to chases room to find that he had. 103 fever and his scalp swelling. I had the nurse get us some ice bags and a phone call later he was in for a CT scan. I was confused earlier that he wasn't getting any antibiotics. The doc came by and now he is back on them. Going from constant nurse care to very little care stinks. Now it's parent care and check ups from the nurse. Other than that Karen Maisey came by to see Chase. She has her own worries here but is still amazing enough to find time to come check on us. He nurse came to get blood to get some cultures but after 3 attempts and chase Freaking out we gave up. Now he is still not on the antibiotics because there is no blood work. Vicious cycle and chase is the one sleeping with ice bags in his armpits. I hope as great as today was that tomorrow has less complications. Love you all. Thanks for your prays support and love.


Day 26

Sunday. July 13th
1:20pm
I just got a call, Chase is doing really bad. Please pray. I promise to tell you more when I know more. He is moving back to the ICU.

2:30pm 
Kami / Chase Update:
We are back in the ICU, and on a ventilator again.
Chase became pretty unresponsive, his limbs were turning purple, and his heart-rate and blood pressure shot up. His breathing sped up and was shallow. They had to take him off his tube feedings again because he wasn't digesting it even with medication. He weighed in today at 101lbs.
Phil and our friend John gave him a blessing. Phil blessed his pancreas to function in the blessing. Then when he was done with the blessing he asked what does the pancreas do? 
If his pancreas hasn't been working then it would explain why he looks like he's starving, and why he hasn't been digesting his food.
I believe in the power of the priesthood, the healing power of he Lord. We have amazing doctors, and incredible nurses.
I know setbacks happen, and I believe this one happened how and when it did for a reason. I don't know what it is, but if it leads to him gaining weight and his health returning then it's a blessing not a setback.
I am logically calm, and I have faith in The Lord, but it has been almost 4 weeks of forever now. Emotionally I am tired, and impatient, and I want my son back now! So today I am just going to be sad, and scared for a little while. My son is in my Heavenly Father's hands so I don't need to be anything but a worried Mom for a while.
I'm not asking for prayers for progress, just for healing. Please pray for his body to be able to absorb nutrition, starvation is our main concern at this point.
Thank you for caring for us. For sorrowing when we sorrow, for cheering when we cheer, and for praying as we pray.
May God bless you and keep you until we meet again.
We are legion!

**We now know that Chase contracted Carbapenem-resistant Enterobacteriaceae or CRE. It kills 50% of patients who contract it. He got it in the Hospital, and it obviously almost killed him.**

9:45 pm
Kami / Chase update:
Chase is being fed intravenously with fatty lipids and proteins. They are pumping antibiotics, and fluid in him.
They thought he had infectious fluid around his kidney that was accounting for the high white blood cell counts, and fever, but a procedure to draw some of the fluid came back negative. So now we play the game "Hunt for the Infection". Fun times. They gave him some Versad to calm him down during CT and he has been sleeping great for the last few hours. He looks better, a lot better. He has great color now, but he still look like he is starving. It's sad.
So this horrific adventure has yielded some great blessings.
- While his scalp is swollen, the brain is less swollen than the last CT.
- He is now getting useable nutrition, and there is testing underway to figure out why he wasn't digesting and absorbing it from his tubal feedings.
- We are back in the ICU with the best medical staff available. Did we mention how much we love our ICU nurses.
- We know there is an infection Somewhere which accounts for the fever and hence the high fever and blood pressure.
- He was communicating for just a few minutes tonight. *Drat I missed it*
Who knows what The Lord has planned next. I'm figuring out it won't be boring.
We are so thankful to have you on this grand adventure with us.
Please add our petitions to yours in your prayers tonight.
We thank our Heavenly Father for his mercy and grace. We thank him for hearing our prayers, and for caring for Chase. We thank him for the reminder of how miraculous this journey has been. We ask for patience to see Chase's miracle through at the Lords pace, and in his own way rather than our way. For comfort in times like these when our hearts drop to the floor and our souls cry out in anguish.
We especially thank The Lord God for the gift of his Son. For the atonement of Jesus Christ to allow us a way to be clean when we fall short of perfect. To have someone in our corner who can sorrow with us because he has suffered for us. We thank him for our friends old and new, and ask him to bless and comfort you in your trials and daily lives. May God Bless you and keep you until we meet again.We are Legion!



Day 27

Monday. July 14th
9:00 am

Kami Update:
AHHHHHHHHHHHHHHH!
I am so sick of the beeping, and alarms. I hate it here. I break a little more everyday. Please Lord get us out of here soon. 
Faith precedes the miracle, and I have enough faith to move a mountain. What I don't have is the mental health to survive much more of the unknown.
Please don't confuse my frustration and my overwhelming desire to hit someone in the face, or scream in helpless rage as a lack of faith. I am just breaking. It's okay to break because I have friends, family, and a God to put me back together.
Phil has to go back to work, my kids need a Mom, I need my own space back.
Please God wake my son up.
I am fasting and praying with everything I have inside of me, and I pray if it's not The Lords time that I can keep it together until it is.
Please please join me in praying for Chase to wake up, or for me to find enough strength to get through this for a while longer.
May God bless you and keep you until we meet again. We are legion!

8:45 pm
Chase Update:
Chase's heart rate and blood pressure are so much lower today. He is still battling a high fever off and on. He is managing to digest his food better and the drips of protein and fats in his IV put a few pound on him since yesterday. 
He has regressed a little physically, but mentally he is progressing now that he has food. He is so tired still, starving can do that to you I guess. 
Today he was emoting well, he scowls amazingly well, and tonight we got a smile. It wasn't a smile- smile but his face lit up and he got a little lift to his lip. Of course Phil was acting ridiculous, but it worked. He was trying to answer some questions, but they weren't very definitive. His color is better and his body seems stronger already.
Today he waved at company on request, but he wouldn't do anything else on command. You can see him really concentrating sometimes, and other times he just closes his eyes and pretends to sleep so you will leave him alone. Brat!
I have high hopes for tomorrow. I told him all the reasons I needed him to wake up today, and then to see the progress tonight was encouraging.
My families prayers tonight are the same as this morning. Wake up Chase or grant us the comfort and patience we need to see this through. Please remember Justin in your prayers tonight as well. He is improving very slow, but his chances for recovery aren't as high as ours according to the doctors. We have a legion praying,and miracles trump science. We pray for you with gratitude, thank you for your kind words, and fervent prayers everyday, but especially today.
May God bless you and keep you until we meet again. We are legion!



Day 28

Tuesday. July 15th
3:40 pm

Chase Update: 
Here are Today's miracles to celebrate 4 week since the accident.
1.Chase is breathing on his own with the ventilator.
By tomorrow he will be off of it again.
2. He is following simple commands sporadically, and with great concentration. How amazing is that?
3. He is moving his arms better and we think he understands almost everything we say even if he can't respond how we want. Again Ah-Ma-zing!
He is a miracle.
I am still going full throttle with plan Wake Up Chase! This miracle WILL happen (and is already happening) this week unless doors open to provide a better plan. The hospital is saying we are ready for a LT Hospital aka long term. I feel wretched inside every time I consider that option. It's a logical choice, and a necessary thing, but my intuition hasn't been wrong yet so I will keep trusting it. The problem lies with the fact that he isn't ready for Craig, so an LT is The ONLY option.
How do I reconcile that reality with my own feelings? It could be like my intuition about the trach, I was completely against it, and then one day I woke up and I felt good about it. The Lord didn't allow it to happen until he was ready for it.
So I will go ahead with my plan of Chase making miraculous strides this week and going straight to Craig rehabilitation hospital ,skipping the LT altogether. If The Lord has a different plan I know he will reveal it to me (probably at the last second as it seems that's how he works) Right? It can't only be me it works like that for!
So I am still praying Chase wakes up more this week, and progresses to meet the rehab requirements. If that is not The Lords plan I pray he guides us in the direction he wants us to go. I am praying that Erica gets a miracle this weeks as well with Justin. We pray for you all daily, we thank The Lord for you, and we petition him to bless you in the challenges you are experiencing.
May our Heavenly Father bless you and keep you until we meet again.
We are Legion!

Next         --------> Week 5

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