Day 64
Wed. August 20th
9:40 pm
Chase Update:
Day 29 at Craig Rehab
I look around at the other patients, and with the exception of a few who have been here for a few months or who came here from other rehab facilities, none of them are progressing like Chase is. We have been very specific in our prayers for Chase, and the Lord has provided a miraculous recovery so far. Sometimes the answer has been no or not yet, but he hears and answers us everyday.
How can we ever thank you? We are sprinting through this recovery, and while we know we are still near the starting line, your support has made this race more like a relay than a marathon. Thank you for carrying the baton for a while so we could rest for the next leg. ( if you know me, you will appreciate the irony of me using a running metaphor)
Today Chase practiced balance, and walking in PT.
In OT he is now cleared to shower independently with some transfer help. In Speech he practiced mouth movements and sounds, as well as chewing and swallowing. He really wants to get off this nasty pureed diet. He stood in the standing frame for 30 min (a chair that goes from sitting to standing with support in front of the knees and chest) in UE therapy ( upper extremities) he played more video games with his left arm as the controller.
Chase's energy and attitude were great today. He hung out with me at the apartment tonight, and we watched American Pickers together. We talked for a while about how, much fun we are having, and the reality that we are almost halfway done here. It's a scary and exciting thing at the same time.
How can we ever thank you? We are sprinting through this recovery, and while we know we are still near the starting line, your support has made this race more like a relay than a marathon. Thank you for carrying the baton for a while so we could rest for the next leg. ( if you know me, you will appreciate the irony of me using a running metaphor)
Today Chase practiced balance, and walking in PT.
In OT he is now cleared to shower independently with some transfer help. In Speech he practiced mouth movements and sounds, as well as chewing and swallowing. He really wants to get off this nasty pureed diet. He stood in the standing frame for 30 min (a chair that goes from sitting to standing with support in front of the knees and chest) in UE therapy ( upper extremities) he played more video games with his left arm as the controller.
Chase's energy and attitude were great today. He hung out with me at the apartment tonight, and we watched American Pickers together. We talked for a while about how, much fun we are having, and the reality that we are almost halfway done here. It's a scary and exciting thing at the same time.
We are still praying for him to speak, but especially for him to be able to chew and swallow better ASAP. He barely eats. The food is not appetizing, and so he has to get tubal fed every meal and while he sleeps to get enough calories. His G-Tube hurts all the time and the liquid food makes him nauseous. Not real ideal. We pray he will continues to get his strength and balance back at the same increased rate. They want to send him home with a wheelchair, and if he can be strong enough for long enough he won't need one. It's an extra expense we would rather avoid, including the building of a ramp. We will need to build handrails on the front or back porch before he gets home no matter what though.
We pray that you can be grateful even when things are challenging. No matter how tough things get in my life, I would much rather have my challenges than yours, and you probably feel the same way about my challenges. Tomorrow is a New opportunity to create amazing experiences. Thank you for being a part of ours everyday. May God bless you and keep you until we meet again. We are legion!
More Balance Practice
** Video Links**
More Balance and Strength Practice
Working on facial expression and mouth movement.
Day 65
Thursday August 21st
9:45 pm
Chase Update:
Day 30 at Craig Rehab.
Day 30 at Craig Rehab.
Today was a pretty independent day for Chase. He is working on going through his day on his own, so I just try to stay in the background and give guidance or assistance when needed, or when I forget and he has to remind me to let him do it.
Chase learned to play a new game called blokus, his PT won the first round and then Chase trounced her for the rest of class. Story of her life lol. In OT Chase worked on strength, and balance, and then finished it up with walking. He used a regular walker, but his therapist said he was turning His hips too, much so he switched it with a cane. He did amazing. PT is quickly becoming his favorite class because. He loves to walk. In Speech he practiced writing sentences using a predetermined word
. I'm not sure what he did in his last speech therapy class because I was trying to gather Information for our clinical care manager. In music therapy Chase played the tambourine when his therapist played the guitar, but she was also taping off temp with a metal thing on her foot. She did different exercises with him to keep him on task even, with the distractions. It's fascinating to see how they do therapy with music. Chase did the wheelchair bike for 30 min again today, it seemed way to easy. I think it's time to increase the resistance. He finished off the Day in UE, he graduated to some of the hard video games. He has so much more control over that left arm than he did last week. It's astounding.
Chase pushed through all his classes today even though he had an upset stomach most of the day. I am super proud of him.
Chase learned to play a new game called blokus, his PT won the first round and then Chase trounced her for the rest of class. Story of her life lol. In OT Chase worked on strength, and balance, and then finished it up with walking. He used a regular walker, but his therapist said he was turning His hips too, much so he switched it with a cane. He did amazing. PT is quickly becoming his favorite class because. He loves to walk. In Speech he practiced writing sentences using a predetermined word
. I'm not sure what he did in his last speech therapy class because I was trying to gather Information for our clinical care manager. In music therapy Chase played the tambourine when his therapist played the guitar, but she was also taping off temp with a metal thing on her foot. She did different exercises with him to keep him on task even, with the distractions. It's fascinating to see how they do therapy with music. Chase did the wheelchair bike for 30 min again today, it seemed way to easy. I think it's time to increase the resistance. He finished off the Day in UE, he graduated to some of the hard video games. He has so much more control over that left arm than he did last week. It's astounding.
Chase pushed through all his classes today even though he had an upset stomach most of the day. I am super proud of him.
We had an upsetting experience today. Our care manager told me a lawyer requested Chases medical records today. I had no idea what she was talking about so she went back to her office to get me details. I informed Phil, and I was pretty sick to my stomach with worry. I couldn't do anything about it so I gave it to the Lord. If part of this trial was to come out of this with nothing but our family together again, I would be one blessed woman. I mentioned that was not my preference, but I would accept it if that was the way it played out. I instantly felt peaceful, and went about trying to give my sweetheart the same peace. Less than, an hour later she called me and said it was an error, same patient name, wrong patient. Lol are you kidding me? What are the odds?
For those who wonder how I can be so positive or cheerful, or who wonder if you would respond the way that we have. Consider this quote by Henry B. Iring. -
When hard trials come, the faith to endure them well will be there, built as you may now notice but may have not at the time that you acted on the pure love of Christ, serving and forgiving others as the Savior would have done. You built a foundation of faith from loving as the Savior loved and serving for Him. Your faith in Him led to acts of charity that will bring you hope.
My foundation of Faith and trust in the Lord wasn't formed in my most desperate moment of need. I didn't turn to the Lord because he was my only hope. I turned to him because he was my friend. For years I have served him, and his children. I have studied the words and life of his son. I have tried ro pattern my life after his ministry. I serve when It's inconvenient, I smile often. I forgive myself and ask The Lord for his forgiveness everyday. My foundation was already solid. I know my Lord, and he knows me. So when the storms come, my Faith Is solid.
I sound like a saint, but really I'm trying to be better than the snarky, sarcastic, self centered brat that resides inside of me and tries to get out. I'm a flawed, loud, impatient and a frequently intolerant daughter of God. My flaws make me human, but my righteous desires and the effort I make to be counted among his servants makes me His.
Hope is a precious gift. I have lived my life without it in the past, and it stinks. Where there is Faith in the Lord, and his son Jesus Christ - there you find hope. So tonight I pray you find your hope. I pray that you start now to build your foundation of Faith, so that when the storms come, as they always do, your Faith with be unshakable. I know you have served us and supported us already, so you are well on your way to building that foundation. May The Lord bless you and keep you until we meet again. We are legion.
Hope is a precious gift. I have lived my life without it in the past, and it stinks. Where there is Faith in the Lord, and his son Jesus Christ - there you find hope. So tonight I pray you find your hope. I pray that you start now to build your foundation of Faith, so that when the storms come, as they always do, your Faith with be unshakable. I know you have served us and supported us already, so you are well on your way to building that foundation. May The Lord bless you and keep you until we meet again. We are legion.
Writing Assignment
They made him paint so he did this, and laughed about it the whole time.
Chases facial stitches are healing great
** Video Links**
Friday August 22nd
7:45 pm
Day 31 at Craig Rehab
I posted a few pictures earlier of our outing to Red Rock Ampitheater today. Chase did a lot of walking while we were there, and then proceeded To sleep for 2 hours after. It was cool to go to the museum and see all the amazing musicians, and entertainers that have performed there. We plan to come back next summer, catch a concert, and run the stairs.
Chase had an appointment with NUCCA chiropractor today to help his alignment. I think it went well, it will be interesting to see how walking goes on Monday now that his left leg is no longer a 1\2" shorter than his right. It was fun to spend a few hours with Betsy again. Thank you for being willing to chauffeur us around town. We love you!
Chase is still worn out from the day so he chose to go to bed early tonight, and I have a massive migraine coming on so I am going to sleep before it hits me too bad.
Today was a nice change from having classes all day. I am still praying for Chase to be able to swallow and chew better ASAP. The tube feedings are full of calories, but it also full of soy and corn which cause Inflammation in the brain. The total opposite of what we want. I need to get him on real food. We are also praying for his speech to keep improving. I really miss His voice and the more he wakes up the more frustrated he gets
with not being able to communicate verbally. Thank you for remembering us in your prayers, and for your support. May the Lord bless you and keep you until we meet again. We are legion!
Heading To Red Rocks Amphitheater
Day 67
Saturday August 23rd
8:50 pm
Chase Update:
Day 32 at Craig Hospital
Day 32 at Craig Hospital
Big day!
Chase moved today! We are now in the Craig East building. It's for patients that aren't Acute. We have a New roommate. He's quiet and doesn't say much. That's a huge Change from our last room mate.
Chase and I just played around around and read today. We did a puzzle together, and I tried to talk him into playing parchessi or battleship with me, but he just wanted to read. It's probably because he didn't want to lose, yeah I'm sure that's it.
Some members of the ward here came and picked us up and we went to their "Stake Fair" the Lds church is very organized. So a congregation is called a Ward, and then all the ward's in that area are called a stake...it gets bigger from there, but I digress. There was free food, games, music, and friends. It was a blast. Chase and I got matching glitter mustaches. He tried eating watermelon, but that was a bust. He was a little down because he couldn't do much or eat all the delicious food, but he got really emotional when they started dancing. He loves to dance..........so we Danced. Specifically we did some swing dancing. It wasn't real pretty, but it was pretty fantastic. I will post the videos, and pictures.
I love that kid. Everyday is a miracle, because we lived it with all we had in us.
What kind of amazing blessing did you experience today?
Tonight my prayers are full of thanksgiving. I got to dance with my son, we cried together, we laughed together, we argued together. What a glorious day. We continue to pray for improved speech, mouth movement, chewing, biting and swallowing skills. We pray for you, and for your blessed lives to be even better. We pray that the Lord will bless you and keep you until we meet again. We are Legion!'
Chase moved today! We are now in the Craig East building. It's for patients that aren't Acute. We have a New roommate. He's quiet and doesn't say much. That's a huge Change from our last room mate.
Chase and I just played around around and read today. We did a puzzle together, and I tried to talk him into playing parchessi or battleship with me, but he just wanted to read. It's probably because he didn't want to lose, yeah I'm sure that's it.
Some members of the ward here came and picked us up and we went to their "Stake Fair" the Lds church is very organized. So a congregation is called a Ward, and then all the ward's in that area are called a stake...it gets bigger from there, but I digress. There was free food, games, music, and friends. It was a blast. Chase and I got matching glitter mustaches. He tried eating watermelon, but that was a bust. He was a little down because he couldn't do much or eat all the delicious food, but he got really emotional when they started dancing. He loves to dance..........so we Danced. Specifically we did some swing dancing. It wasn't real pretty, but it was pretty fantastic. I will post the videos, and pictures.
I love that kid. Everyday is a miracle, because we lived it with all we had in us.
What kind of amazing blessing did you experience today?
Tonight my prayers are full of thanksgiving. I got to dance with my son, we cried together, we laughed together, we argued together. What a glorious day. We continue to pray for improved speech, mouth movement, chewing, biting and swallowing skills. We pray for you, and for your blessed lives to be even better. We pray that the Lord will bless you and keep you until we meet again. We are Legion!'
Chases new Room!
Working on Puzzles
** Video Link **
Day 68
Sunday August 24th
8:30 pm
Chase Update:
Day 33 at Craig Hospital
Day 33 at Craig Hospital
Lazy Day!
Chase was a little overstimulated from Saturday's activities so he slept in until 9:30 this morning. He has been an early riser, but that may have been because of his last roommate. Our new roommate is so quiet we barely know he's there.
We read in the garden today, then he attempted to eat lunch. We read some more and then had some visitors. Stacia Martin, and her daughter came to visit, and brought Chase a card drawn by his friend back home. Thanks Baylee. We always love meeting New friends.
Then it was back to an exhausting day of napping, and reading. Dinner was a no go. He didn't even want the pureed cheesecake. Cue more reading, and then bedtime. It's a rough life we are living.
Satudays and Sunday's are such a wonderful break from the classes and intense brain stimulation he has on the weekdays.
Today we are both missing home. We know we still have so far to go, but we are definitely homesick. As excited as we are to have our family coming this weekend, we would rather be at home with them.
One of our favorite things to do is face time as a family, and have family prayer together. It helps to heal the gap that so much distance and time creates.
Chase said I love you to me tonight, and it mostly sounded like I love you. It was very exciting. Please keep the prayers coming. Our miracles happen in increments and then add up to giant moments. Chase loves getting letters, and cards. So thank you to all who have sent them. He reads your comments every day, and I know your support helps him push forward. Thank you for helping us reach our goals one prayer at a time. May the Lord bless you and keep you until we meet again. We are legion.
8:00 am
Chase was a little overstimulated from Saturday's activities so he slept in until 9:30 this morning. He has been an early riser, but that may have been because of his last roommate. Our new roommate is so quiet we barely know he's there.
We read in the garden today, then he attempted to eat lunch. We read some more and then had some visitors. Stacia Martin, and her daughter came to visit, and brought Chase a card drawn by his friend back home. Thanks Baylee. We always love meeting New friends.
Then it was back to an exhausting day of napping, and reading. Dinner was a no go. He didn't even want the pureed cheesecake. Cue more reading, and then bedtime. It's a rough life we are living.
Satudays and Sunday's are such a wonderful break from the classes and intense brain stimulation he has on the weekdays.
Today we are both missing home. We know we still have so far to go, but we are definitely homesick. As excited as we are to have our family coming this weekend, we would rather be at home with them.
One of our favorite things to do is face time as a family, and have family prayer together. It helps to heal the gap that so much distance and time creates.
Chase said I love you to me tonight, and it mostly sounded like I love you. It was very exciting. Please keep the prayers coming. Our miracles happen in increments and then add up to giant moments. Chase loves getting letters, and cards. So thank you to all who have sent them. He reads your comments every day, and I know your support helps him push forward. Thank you for helping us reach our goals one prayer at a time. May the Lord bless you and keep you until we meet again. We are legion.
Day 69
Monday August 25th
8:00 am
Kami Update:
Day 34 at Craig hospital
Day 34 at Craig hospital
I have been laying in bed this morning pondering the question- Why as things are going so well, have I been feeling increasingly melancholy? Why did I feel happier and more at peace in those moments we were hanging onto hope that Chase would not just live, but live through the night? It finally hit me, that in my darkest most desperate moments, for weeks on end, I was either on my knees or carrying a constant pray in my heart. I had opened the conduits of heaven, and allowed myself to be spiritually fed, uplifted, and comforted. I was helpless to change my situation, but I could serve others around me, to ease their suffering and mine.
As Chase has healed and improved I have slowly closed that conduit, opening it for my prayers of gratitude and thanksgiving, but promptly shutting it again as I continue on with my day. It was never Intentional, and it was how I went about my days prior to the accident.
I suppose that one of Satan's greatest strategy is giving us so many wonderful worldly things to fill our lives with, that we have no time to ponder, or wonder what is missing in our lives. So many of us recognize how blessed we are, and yet we feel empty or depressed. How many of us have a God shaped hole in our lives that we go about trying to fill with everything other than God?
As Chase has healed and improved I have slowly closed that conduit, opening it for my prayers of gratitude and thanksgiving, but promptly shutting it again as I continue on with my day. It was never Intentional, and it was how I went about my days prior to the accident.
I suppose that one of Satan's greatest strategy is giving us so many wonderful worldly things to fill our lives with, that we have no time to ponder, or wonder what is missing in our lives. So many of us recognize how blessed we are, and yet we feel empty or depressed. How many of us have a God shaped hole in our lives that we go about trying to fill with everything other than God?
So I lay here considering my situation. How do I go about keeping that conduit open constantly when things in my life are going well? It's easier when you are desperate and Divine Intervention is the only hope, but what about when things are going well, and we are immersed in our daily lives. It seems I unknowingly tried to figure out how to fit the Lord in my day. I scheduled him moments in my daily, morning prayers, prayers of thanks over meals, and my evening prayers. Those moments came of course, if I remembered or didn't over schedule my day and collapse in exhaustion.
It sounds horrible when it's written out there in black and white, but that doesn't make it any less true.
So now I have my epiphany, what do I do with it? How do I go about making room for the Lord in my life? I ask myself the question, not because I don't want him there, but because I'm not sure how to go about doing it. I love to go to church, because I am spiritually fed for 3 hours. I used to wonder How someone could tell me they got nothing out of church, or even that they didn't like to go. Now I realize, I love church because I open those conduits up when I enter the building. I allow the Lord's spirit to teach me, and uplift me. So I guess "I" am the key.
So here is my game plan ( if I have a plan, I mean business)
Step one: I am going to make an active effort to keep my connection to the Lord open while I go about my day. I will do this, by asking the Lord to be with me today, to remind me, and to help me recognize his spirit. If that isn't enough, I will set my phone alarm to go off in intervals so I can stop and offer up a silent prayer.
Next I am going to read my scriptures everyday. Even if it's a verse, its one more way to open the conduit. I have them on my phone so there are no excuses, I will probably have to set my alarm to remember that as well.
Lastly, as I open the communication between myself and heaven, I will ask the Lord daily that he will provide an opportunity for my hands to be his hands. That he will provide inspiration to guide me to those who are in need.
It sounds horrible when it's written out there in black and white, but that doesn't make it any less true.
So now I have my epiphany, what do I do with it? How do I go about making room for the Lord in my life? I ask myself the question, not because I don't want him there, but because I'm not sure how to go about doing it. I love to go to church, because I am spiritually fed for 3 hours. I used to wonder How someone could tell me they got nothing out of church, or even that they didn't like to go. Now I realize, I love church because I open those conduits up when I enter the building. I allow the Lord's spirit to teach me, and uplift me. So I guess "I" am the key.
So here is my game plan ( if I have a plan, I mean business)
Step one: I am going to make an active effort to keep my connection to the Lord open while I go about my day. I will do this, by asking the Lord to be with me today, to remind me, and to help me recognize his spirit. If that isn't enough, I will set my phone alarm to go off in intervals so I can stop and offer up a silent prayer.
Next I am going to read my scriptures everyday. Even if it's a verse, its one more way to open the conduit. I have them on my phone so there are no excuses, I will probably have to set my alarm to remember that as well.
Lastly, as I open the communication between myself and heaven, I will ask the Lord daily that he will provide an opportunity for my hands to be his hands. That he will provide inspiration to guide me to those who are in need.
Before when I would hear- say your prayers, go to church, read your scriptures, serve willingly, I never really understood. I did them for a while, but it was because I was supposed to, so I would slowly forget because my heart wasn't in it.
Now I get it. It's like opening up the information super highway to heaven. We wouldn't expect to get information off the internet from a computer that was powered down, so how can we expect to receive information and inspiration from the Lord when We have essentially powered down that connection?
I would love to have you join me. I pray that your day is full of inspiration,and joy. May our Heavenly Father bless you and keep you until we meet again. We are Legion!
Now I get it. It's like opening up the information super highway to heaven. We wouldn't expect to get information off the internet from a computer that was powered down, so how can we expect to receive information and inspiration from the Lord when We have essentially powered down that connection?
I would love to have you join me. I pray that your day is full of inspiration,and joy. May our Heavenly Father bless you and keep you until we meet again. We are Legion!
9:30 PM
Chase Update:
Day 34 at Craig hospital
Day 34 at Craig hospital
Today was a busy Monday, Chase did a lot of walking, He shot some hoops with the basketball, and played catch with his PT who had me hold onto him and he threw it so that Chase had to reach and shift his weight. He did great. In OT the therapist checked his vision, and set up an appointment with an optometrist for Wed. His vision seems to be much worse than before the accident. OT had a joint session, with music therapy today, and they worked on hand movement on the piano and the guitar. Chase loves music, but it's frustrating to not remember the chords, or to get your fingers to work properly.
In speech therapy Chase showed off how well he had practiced moving his mouth on command over the weekend. He also worked on making vowel sounds. Its tiny improvements everyday, we know they will eventually lead to speech, but it gets a little discouraging sometimes when he tries so hard and his mouth just won't cooperate. Chase showed his speech therapist how hard he has been practicing with his chewing, we have high hopes that he gets to step up to a mash-able diet instead of a pureed one. Fingers crossed. Chase rode the wheelchair bike for 30 min today, but he increased the resistance so that He had to work harder. He did great of course.
We ended the Day with an outing to the miniature golf course, and thank goodness I won or He would have teased me about it for the rest of my life. Chase walked. 2/3 of the 18 hole course, and then his legs started shaking and he had to sit in between holes to rest. He is amazing.
Chase got frustrated at me today, when he gets mad he talks and I can understand him. Today he told me he still has food in his mouth, when I told him to eat more. It sounds like he has marble in his mouth, but I could understand him. Its the 3rd time it's happened in the last few weeks.
We are exhausted, and ready for bed. So I will sign off once again and ask that the Lord will bless you and keep you until we meet again. We are Legion.
In speech therapy Chase showed off how well he had practiced moving his mouth on command over the weekend. He also worked on making vowel sounds. Its tiny improvements everyday, we know they will eventually lead to speech, but it gets a little discouraging sometimes when he tries so hard and his mouth just won't cooperate. Chase showed his speech therapist how hard he has been practicing with his chewing, we have high hopes that he gets to step up to a mash-able diet instead of a pureed one. Fingers crossed. Chase rode the wheelchair bike for 30 min today, but he increased the resistance so that He had to work harder. He did great of course.
We ended the Day with an outing to the miniature golf course, and thank goodness I won or He would have teased me about it for the rest of my life. Chase walked. 2/3 of the 18 hole course, and then his legs started shaking and he had to sit in between holes to rest. He is amazing.
Chase got frustrated at me today, when he gets mad he talks and I can understand him. Today he told me he still has food in his mouth, when I told him to eat more. It sounds like he has marble in his mouth, but I could understand him. Its the 3rd time it's happened in the last few weeks.
We are exhausted, and ready for bed. So I will sign off once again and ask that the Lord will bless you and keep you until we meet again. We are Legion.
Heading to play mini golf.
** Video Links **
Wahoo!
Trying to get his Left hand working better
Chase first time holding a guitar since the accident. It's a start!
Day 70
Tuesday August 26th
10:00 pm
Chase Update:
Day 35 at Craig Rehab
Day 35 at Craig Rehab
Chase was upgraded to a mechanical grind menu today. I was reading over his menu choices and he seriously started crying when I said cheese omelet, and chopped hamburger with ketchup. He hugged me grinning. He grinned though most of lunch and dinner today, and for the first time since the accident he willingly ate his meals. He still can't eat enough to satisfy his caloric needs, but it's a fantastic start.
Speech therapy was a huge success, Chase was able to make some of the vowel sounds today, and he tried saying mom today, and it came out as mah. He can't quite get his mouth closed to finish the word yet. I bawled, he held me and grinned. We are getting closer everyday.
Today I had a meeting with the PT and OT about the home modifications that have to happen before we get home. Phil and I are most likely moving him into our room. He can't handle the stairs in our older home. Our first priority is that we must have hand rails on our back patio, anyone know how to build hand rails? Lol
Chase and I are so excited for Phil and the kids to come. My mom and dad are coming this weekend as well. Chase and I are excited about seeing them all. My friend Kerrie took me grocery shopping tonight. Its hilarious the comments I get from people when they see me hauling mass quantities of food into the apartment. Their faces are even better when I tell them it's for the weekend.
Chase continues to push himself, and his therapists. I tell them what his goals are and they provide a small window for him to test his abilities so we know if its a realistic goal, and what the steps are to reaching it. He hasn't failed to blow them away yet.
I continue to pray that the Lords loosens and stimulates Chase's mouth muscles so that he can speak soon. My biggest fears come when I think about how I will help him with his speech after we leave here. Most people go to outpatient facilities, but we don't have many options where we live. I pray we don't have to drive 4 hours a day, or get an apartment and move somewhere for a few months. I want desperately to be home as a family. So my prayers for speech ASAP are because I need him to progress as much as possible while we have the resources available to us. I pray The Lord will show his hand and guide me to the right resources if that answer is no. I pray Chase continues to reach his walking goals, and his legs continue to strengthen and work together. I pray he regains the ability to use his fingers and accomplish fine motor skills. It all come down to asking to witness the fulfillment of the promise he made me to make my son whole, and to grant me the patience and fortitude to see it come to fruition in the Lord's time.
The Prophet of our church encourages us to "Find Joy in the Journey." So tonight my prayer for all of us is that we have the patience and the faith to find the joy in the journey rather than wishing the hard moments away. It's those dark or difficult moments that enable us to recognize the joy. May The Lord bless you and keep you until we meet him. We are legion.
Speech therapy was a huge success, Chase was able to make some of the vowel sounds today, and he tried saying mom today, and it came out as mah. He can't quite get his mouth closed to finish the word yet. I bawled, he held me and grinned. We are getting closer everyday.
Today I had a meeting with the PT and OT about the home modifications that have to happen before we get home. Phil and I are most likely moving him into our room. He can't handle the stairs in our older home. Our first priority is that we must have hand rails on our back patio, anyone know how to build hand rails? Lol
Chase and I are so excited for Phil and the kids to come. My mom and dad are coming this weekend as well. Chase and I are excited about seeing them all. My friend Kerrie took me grocery shopping tonight. Its hilarious the comments I get from people when they see me hauling mass quantities of food into the apartment. Their faces are even better when I tell them it's for the weekend.
Chase continues to push himself, and his therapists. I tell them what his goals are and they provide a small window for him to test his abilities so we know if its a realistic goal, and what the steps are to reaching it. He hasn't failed to blow them away yet.
I continue to pray that the Lords loosens and stimulates Chase's mouth muscles so that he can speak soon. My biggest fears come when I think about how I will help him with his speech after we leave here. Most people go to outpatient facilities, but we don't have many options where we live. I pray we don't have to drive 4 hours a day, or get an apartment and move somewhere for a few months. I want desperately to be home as a family. So my prayers for speech ASAP are because I need him to progress as much as possible while we have the resources available to us. I pray The Lord will show his hand and guide me to the right resources if that answer is no. I pray Chase continues to reach his walking goals, and his legs continue to strengthen and work together. I pray he regains the ability to use his fingers and accomplish fine motor skills. It all come down to asking to witness the fulfillment of the promise he made me to make my son whole, and to grant me the patience and fortitude to see it come to fruition in the Lord's time.
The Prophet of our church encourages us to "Find Joy in the Journey." So tonight my prayer for all of us is that we have the patience and the faith to find the joy in the journey rather than wishing the hard moments away. It's those dark or difficult moments that enable us to recognize the joy. May The Lord bless you and keep you until we meet him. We are legion.
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