Day 15
Wed. July 2nd
9:00 am
Chase update: Today is a same-same kinda day. Which is actually great news, I think.
He is still battling a fever
His heart is still beating around 115
He is still on 60% oxygen
ICP's are in the 17-20 range.
His lungs are a little better today!
He got a bath today. Hurray, he was getting eye watering lol!
He got a CT scan today to look at his spine and make sure there is no injury, there.
The doctor didn't talk to us until later in the day yesterday so we just wait around all day to hear the results, and to also find out if he can get his trach and peg tomorrow. Fingers crossed. The Doc said he wanted another good day, and we have him one so far.
Justin had an amazing MRI with positive results. Keep him in your prayers today while he is getting his trach and Peg in.
Today we are praying that chases lungs will continue to heal, that his brain swelling will decrease, we pray he will be able to get his trah and peg tomorrow. As always we ask him to accomplish these things according to his will, and in his own time. We are so grateful to The Lord for hearing and answering our prayers. For his miracles we are bathed in daily, and for his love. Thank you for your never ending prayers, and faith. May our Heavenly Father bless you and keep you until we meet again. We are Legion!
4:30 pm
Chase update:
Wed. July 2nd
Good news!!!!!
Chases Trach and PEG are scheduled for sometime tomorrow. I'm sure it will shock no one that I am not going to believe it until they wheel him into the operating room.
His CT scan on his neck and spine show nothing of concern.
The doctor is planning to take the ICP monitor out Friday. He said it's been in too long, and they don't want infection.
His spinal fluid is clear of any infection - so no meningitis! Wait! What? That was a concern still? Sheesh!
He is still battling a fever
His heart is beating at around 120
He is still on 60% oxygen
ICP's are in the 17-20 range. I'm not sure what I am going to do with myself when I don't have the ICP Monitor to stare at all day. Guess he better wake up!
Again, thank you for your prayers and faith. Thank you for your service, for visits, gifts, concerns and most of all your love. Thank you for loving my son, whether you have ever met him or not.
Please pray that if it be his will Chase will be able to get his surgeries done tomorrow, with no complications.
We are ready to move forward. Next week we will start the process of finding a rehabilitation facility.
I'm terrified to go home and face the bills.
The reality of living life in another city and away from my other kids and husband while I am with Chase at the rehabilitation center is worrysome. But praise be to my Lord God, for the opportunity to worry about these things while I look into my son's eyes.
May our Heavenly Father bless you and keep you until we meet again. We are Legion!
Day 16
Thurs. July 3rd
9:30 am
Chase update:
Thursday July 3rd
It may only be the 3rd of July, but today is our Independence Day.
Chase is getting his trach today so he will be free from that horrible ventilator down his throat. He is also getting his PEG today- That's a feeding tube in his stomach so they there will be nothing on his face anymore. Wahoooooo! I get to see his whole face including his little chin whiskers and his sad little mustache. Heehee!
He still has a fever, and they are trying to keep his blood pressure down still, BUT his oxygen is down to 50% wahoo.
His ICP's are still about the same as yesterday.
He got to have physical therapy today. They just stretched is legs and hips, but hallelujah. He is so swollen, he looks pudgy. Pudgy, and scraggly whiskers with a shaved head. Poor kid, guess it's good they won't let us take pictures.
It's almost overwhelming to go from constant waiting and setbacks to moving forward so quickly.
Can you feel our excited energy?
Please pray for Chases's surgeries today, and pray that Heavenly Father guides me to the right Rehab facility. We pray for you every night, and ask The Lord to bless you for your faithful prayers and concern for us. We ask him to bless you in whatever trials you are struggling with in your lives right now. We pray that we can be The Lord's hands today, and he will guide us to those we can serve. That we can be free of our own worries for a moment while we ease someone else's. May God bless you and keep you until we meet again. We are Legion!
Thursday July 3rd
It may only be the 3rd of July, but today is our Independence Day.
Chase is getting his trach today so he will be free from that horrible ventilator down his throat. He is also getting his PEG today- That's a feeding tube in his stomach so they there will be nothing on his face anymore. Wahoooooo! I get to see his whole face including his little chin whiskers and his sad little mustache. Heehee!
He still has a fever, and they are trying to keep his blood pressure down still, BUT his oxygen is down to 50% wahoo.
His ICP's are still about the same as yesterday.
He got to have physical therapy today. They just stretched is legs and hips, but hallelujah. He is so swollen, he looks pudgy. Pudgy, and scraggly whiskers with a shaved head. Poor kid, guess it's good they won't let us take pictures.
It's almost overwhelming to go from constant waiting and setbacks to moving forward so quickly.
Can you feel our excited energy?
Please pray for Chases's surgeries today, and pray that Heavenly Father guides me to the right Rehab facility. We pray for you every night, and ask The Lord to bless you for your faithful prayers and concern for us. We ask him to bless you in whatever trials you are struggling with in your lives right now. We pray that we can be The Lord's hands today, and he will guide us to those we can serve. That we can be free of our own worries for a moment while we ease someone else's. May God bless you and keep you until we meet again. We are Legion!
2:15 pm
Chase update:
Thursday July 3rd Chase is done with surgery! It's was a success and he came out of surgery with lower ICP's than he went in with. The boy loves his elevator rides.
It's so nice to see his face as they wheeled him by.
We graduated to a room in the ICU with a window,
Project Wake Up Chase can now move forward with the waking up part.
So please pray for him to be able to wake up. He has been on a lot of serious and possibly addictive sedatives and pain killers. Please pray that he can detox with no adverse side effects. Please pray The Lord will wake him up in the best and most beneficial way.
Thank you for being you! May god bless you and keep you until we meet again. We are Legion.
Thursday July 3rd Chase is done with surgery! It's was a success and he came out of surgery with lower ICP's than he went in with. The boy loves his elevator rides.
It's so nice to see his face as they wheeled him by.
We graduated to a room in the ICU with a window,
Project Wake Up Chase can now move forward with the waking up part.
So please pray for him to be able to wake up. He has been on a lot of serious and possibly addictive sedatives and pain killers. Please pray that he can detox with no adverse side effects. Please pray The Lord will wake him up in the best and most beneficial way.
Thank you for being you! May god bless you and keep you until we meet again. We are Legion.
Day 17
Friday. July 4th
11:20 am
Kami Update;
Happy Independence Day!
So many amazing thing to report.
Today at 9 am they took Chase off of sedation. You can't understand the word independence until you truly understand the word dependence. It could take as much as a week maybe even more to completely get the medication out of his system. 16 days of heavy mediation doesn't go away overnight.
Chase is keeping his eyes open for longer periods of time. He blinks a lot. He is focusing more, but he doesn't move his eyes or "track" yet.
He got physical therapy again today. If his ICP numbers are any indication, it felt good to be stretched.
He is still on blood pressure medication, and a ton of antibiotics. He is still on morphine, though. They will resume feeding him at 12 today through his new G-tube (feeding tube in his stomach) and then if he does well with that they will stop pumping him full of the saline solution.
His lungs are a little better today, everyday they improve.
His heart rate has lowered a bit, and today we are at 40% oxygen. When this goes down it means that he needs less pure oxygen to be able to breathe - his lungs are clearing up!
The ICP monitor is coming out sometime today. That thing has been my best friend and my worst enemy so I have mixed feelings about it going away.
The doctor said he hopes by next Friday we have a response from the rehab center. We just have to get his lungs healthy.
Our nurse said to me "With TBI ( traumatic brain injury) the good things happen slowly, and the bad things happen fast. We like slow."
If my other option is those heartbreaking, and soul shattering moments I've already experienced. Then I think The Lord has figured out a way to teach me patience.
Holy miracles Rolling in
Batman!
So please, please pray that Chase's body can efficiently heal and remove the medications from his body. That he can wake up at the appropriate speed to avoid Him panicking or causing himself injury. Please pray his lungs heal quickly, so he can breathe on his own, pray that The Lord will lead us to the right rehabilitation facility, and above all pray that this is all done according to his will.
The prayers of gratitude for the miracles he has granted us are more important than the pleas for healing and miracles. So I pray that as the desperation of our pleas have eased we continue our fervent prayers by filling them with gratitude.
Thank you so much for you love and support. May God bless you and keep you until we meet again. We are legion!
So many amazing thing to report.
Today at 9 am they took Chase off of sedation. You can't understand the word independence until you truly understand the word dependence. It could take as much as a week maybe even more to completely get the medication out of his system. 16 days of heavy mediation doesn't go away overnight.
Chase is keeping his eyes open for longer periods of time. He blinks a lot. He is focusing more, but he doesn't move his eyes or "track" yet.
He got physical therapy again today. If his ICP numbers are any indication, it felt good to be stretched.
He is still on blood pressure medication, and a ton of antibiotics. He is still on morphine, though. They will resume feeding him at 12 today through his new G-tube (feeding tube in his stomach) and then if he does well with that they will stop pumping him full of the saline solution.
His lungs are a little better today, everyday they improve.
His heart rate has lowered a bit, and today we are at 40% oxygen. When this goes down it means that he needs less pure oxygen to be able to breathe - his lungs are clearing up!
The ICP monitor is coming out sometime today. That thing has been my best friend and my worst enemy so I have mixed feelings about it going away.
The doctor said he hopes by next Friday we have a response from the rehab center. We just have to get his lungs healthy.
Our nurse said to me "With TBI ( traumatic brain injury) the good things happen slowly, and the bad things happen fast. We like slow."
If my other option is those heartbreaking, and soul shattering moments I've already experienced. Then I think The Lord has figured out a way to teach me patience.
Holy miracles Rolling in
Batman!
So please, please pray that Chase's body can efficiently heal and remove the medications from his body. That he can wake up at the appropriate speed to avoid Him panicking or causing himself injury. Please pray his lungs heal quickly, so he can breathe on his own, pray that The Lord will lead us to the right rehabilitation facility, and above all pray that this is all done according to his will.
The prayers of gratitude for the miracles he has granted us are more important than the pleas for healing and miracles. So I pray that as the desperation of our pleas have eased we continue our fervent prayers by filling them with gratitude.
Thank you so much for you love and support. May God bless you and keep you until we meet again. We are legion!
Day 18
Saturday. July 5th
9:00 am
Chase Update:
Guess what? We can communicate with Chase. He blinks fast twice for yes and a slower once for no. He gets tired easily, but we can usually get a few answers out of him.
He knows he's in the hospital, he remembers the accident, he said he can feel us squeezing his hands but he can't squeeze back.
He is tracking with his eyes a little. And he moved his right leg involuntarily yesterday. We ask him frequently if he is in pain, and he only said he was once so he got a little more morphin. He did say yes when we asked him if he was scared. *sob*
He really really likes to have Phil read him facebook messages, especially from his friends. So please send messages to him today. You can comment to this or if we aren't friends you can send me a message.
And of course he love to listen to music.
He prefers his grandma over me, who could blame him- she's awesome.
His swelling has gone down a little today in his body.
His heart rate and blood pressure are erratic, but that could be caused by neuro damage or pain, and his fever is definitely Neuro- which means we just chase it until his body figures out how to regulate it.
Still on the ventilator, and he had to have some sedation last night to calm him down. He is progressing!
He knows he's in the hospital, he remembers the accident, he said he can feel us squeezing his hands but he can't squeeze back.
He is tracking with his eyes a little. And he moved his right leg involuntarily yesterday. We ask him frequently if he is in pain, and he only said he was once so he got a little more morphin. He did say yes when we asked him if he was scared. *sob*
He really really likes to have Phil read him facebook messages, especially from his friends. So please send messages to him today. You can comment to this or if we aren't friends you can send me a message.
And of course he love to listen to music.
He prefers his grandma over me, who could blame him- she's awesome.
His swelling has gone down a little today in his body.
His heart rate and blood pressure are erratic, but that could be caused by neuro damage or pain, and his fever is definitely Neuro- which means we just chase it until his body figures out how to regulate it.
Still on the ventilator, and he had to have some sedation last night to calm him down. He is progressing!
Today we pray that Chase can figure out the neuro-pathways to move his arms and legs, that his body with regulate his fever, and blood pressure. We pray he can overcome the pneumonia, and in doing so eventually get off the ventilator. We pray he is comforted in his body, and can be patient with the disabilities he is experiencing. All of his we pray is done according to The Lord's will and in his time.
We praise The Lord for the miracle of being able to communicate with him, and for his healing so far. We pray for you, for your support, your prayers, your faith, and your hope. Thank you for helping us "Wake up Chase"May God bless you and keep you until we meet again. We are Legion!
We praise The Lord for the miracle of being able to communicate with him, and for his healing so far. We pray for you, for your support, your prayers, your faith, and your hope. Thank you for helping us "Wake up Chase"May God bless you and keep you until we meet again. We are Legion!
3:30 pm
Kami / Chase update:
I think Chase has his days and nights mixed up. He stayed awake all night and now when I am awake and I want to talk, he is sleeping.
He has told me he loves me today (3 blinks)
He looked at the nurse ( moved his eyes to the right) when she was irritating him.
He has some glass in his face that the skin has grown over. At first I was furious when I found it and then I thought duh I wonder how they missed 4 pieces of glass in his face while they were frantically trying to keep my son from bleeding out, or dying from intense brain swelling. Little things, hopefully he will naturally push them out.
They took the IPC monitor out today, I'm feeling kind of lost.
His CT scan shows his swelling going down still
He can purse his lips and he kind of frowns, but no smiles yet.
I have to keep reminding myself to rejoice in the little miracles instead of being greedy for new ones.
He is definitely being stubborn today, now that he can say no he does it a lot when we tell him what's Happening-
Nurse- chase? I have to put ice packs in your arm pits and groin area
Chase- no!
Nurse - sorry chase we have to get rid of your fever
Chase-No!
Lol poor kid!
They say the eyes are the window to your soul. You can see emotions flash through is eyes. from pain and frustration to joy and love. It's crazy.....or else we are. It's hard to know when you are so desperate to communicate.
We have been so blessed by the Minot 1st, 2nd & 3rd wards. They have brought lunch and dinner in for our family everyday. This has been the most amazing blessing. Our Williston wards & the whole stake, have been so great to us! Fasting and praying, visiting, taking Care of our kids, our home and yard. Seriously we have the most amazing friends and family. A huge thank you to those of you near and far for blessing us in whatever capacity you have been capable. We give God thanks for you. We are Legion!
I think Chase has his days and nights mixed up. He stayed awake all night and now when I am awake and I want to talk, he is sleeping.
He has told me he loves me today (3 blinks)
He looked at the nurse ( moved his eyes to the right) when she was irritating him.
He has some glass in his face that the skin has grown over. At first I was furious when I found it and then I thought duh I wonder how they missed 4 pieces of glass in his face while they were frantically trying to keep my son from bleeding out, or dying from intense brain swelling. Little things, hopefully he will naturally push them out.
They took the IPC monitor out today, I'm feeling kind of lost.
His CT scan shows his swelling going down still
He can purse his lips and he kind of frowns, but no smiles yet.
I have to keep reminding myself to rejoice in the little miracles instead of being greedy for new ones.
He is definitely being stubborn today, now that he can say no he does it a lot when we tell him what's Happening-
Nurse- chase? I have to put ice packs in your arm pits and groin area
Chase- no!
Nurse - sorry chase we have to get rid of your fever
Chase-No!
Lol poor kid!
They say the eyes are the window to your soul. You can see emotions flash through is eyes. from pain and frustration to joy and love. It's crazy.....or else we are. It's hard to know when you are so desperate to communicate.
We have been so blessed by the Minot 1st, 2nd & 3rd wards. They have brought lunch and dinner in for our family everyday. This has been the most amazing blessing. Our Williston wards & the whole stake, have been so great to us! Fasting and praying, visiting, taking Care of our kids, our home and yard. Seriously we have the most amazing friends and family. A huge thank you to those of you near and far for blessing us in whatever capacity you have been capable. We give God thanks for you. We are Legion!
6:45pm
Chase update:
Okay this is the 3rd update today, take a deep breath!
Chase moved!
Phil gave him a Father's blessing and as we said Amen he lifted his hand and moved his arm. I about came unglued. Then he moved both arms and both legs. I am so freaking HAPPY!
Take however you are feeling right now and times it by 1,000. I had to look and Phil, Brooklyn and the nurse to make sure they all saw it too!
He promptly went to sleep after, and I had to leave the room so I could do a happy dance, wipe my joyful tears away, and tell someone. Also I didn't trust myself not to try and wake him up.
Phil gave him a Father's blessing and as we said Amen he lifted his hand and moved his arm. I about came unglued. Then he moved both arms and both legs. I am so freaking HAPPY!
Take however you are feeling right now and times it by 1,000. I had to look and Phil, Brooklyn and the nurse to make sure they all saw it too!
He promptly went to sleep after, and I had to leave the room so I could do a happy dance, wipe my joyful tears away, and tell someone. Also I didn't trust myself not to try and wake him up.
Please thank our Heavenly Father fervently today for blessing us with this miracle.
We are legion!
We are legion!
11:30pm
Phil Update:
Hi all. We sure had some nice visits from lots of our friends and ward families. I know everyone was hoping to get chase talking/blinking but the nurses had him drugged do to high blood pressures and a hot fever again. Several people did get to see him with his eyes open. I believe a few even got to see him move. Tonight as I was moving his arm he resisted me. I told the nurse and chase was able to replicate it. His eyes were open and you could see he was happy with himself. It was nice to see that small change. I believe he is getting frustrated with not being able to control his body. He is coming along but like me his patience is being tried. He is doing amazing things. I told him he has to be patient and that we will get it all sorted out. Baby steps every day will eventually get us wherever want to be. It's amazing that this - still seems to be so unreal. This next week will be a very telling time. Hopefully by next weekend we have a sure direction on what will be taking place with our family and rehab for chase. One way or another it looks like Kami will be going with chase and the rest of the kids will be with me in Williston. It will all work out according to gods plan. We know it will be good. Thank you again for all your love and support. We love you. Please continue to pray for us.
Hi all. We sure had some nice visits from lots of our friends and ward families. I know everyone was hoping to get chase talking/blinking but the nurses had him drugged do to high blood pressures and a hot fever again. Several people did get to see him with his eyes open. I believe a few even got to see him move. Tonight as I was moving his arm he resisted me. I told the nurse and chase was able to replicate it. His eyes were open and you could see he was happy with himself. It was nice to see that small change. I believe he is getting frustrated with not being able to control his body. He is coming along but like me his patience is being tried. He is doing amazing things. I told him he has to be patient and that we will get it all sorted out. Baby steps every day will eventually get us wherever want to be. It's amazing that this - still seems to be so unreal. This next week will be a very telling time. Hopefully by next weekend we have a sure direction on what will be taking place with our family and rehab for chase. One way or another it looks like Kami will be going with chase and the rest of the kids will be with me in Williston. It will all work out according to gods plan. We know it will be good. Thank you again for all your love and support. We love you. Please continue to pray for us.
Day 19
Sun. July 6th
8:00 am
Chase Update:
I want to explain why I close with We are Legion, as it has some negative connotations.
I want to explain why I close with We are Legion, as it has some negative connotations.
A legion is a large multitude in the thousands, or a large military group. It is structured and focused. We are one heart, and one purpose. We are an unstoppable legion of the faithful, the hopeful, and we are unashamed.
Chase moved his head twice last night, once for Phil and once for the nurse. Wahooo!
They are still trying to control his blood pressure. He only spiked a fever once last night.
Respiratory turned the ventilator to assist for 5 minutes today. His breathing was erratic, but he was doing it with assistance. Baby steps.
They are still trying to control his blood pressure. He only spiked a fever once last night.
Respiratory turned the ventilator to assist for 5 minutes today. His breathing was erratic, but he was doing it with assistance. Baby steps.
Today we pray that Chase's lungs will clear and heal. We pray for him to be comforted while he is essentially trapped in his body. We pray he continues to progress in a swift manner. We also pray for Justin's healing, and Erica's comfort. (Justin is Chase's ICU neighbor) all of this we ask to be done in accordance to The Lord's will. We ask The Lord to bless you, to comfort you, and to guide you in your challenges.
We thank The Lord for the trials we are experiencing now. We praise God for loving us enough to give us trials. For refining and molding us into something greater. For helping us to become better than we were, and setting us on a path to be great. Thank you Heavenly Father for trusting us to be strong enough to soar through this trial rather than just endure.
May God Bless you and keep you until we meet again We are Legion!
We thank The Lord for the trials we are experiencing now. We praise God for loving us enough to give us trials. For refining and molding us into something greater. For helping us to become better than we were, and setting us on a path to be great. Thank you Heavenly Father for trusting us to be strong enough to soar through this trial rather than just endure.
May God Bless you and keep you until we meet again We are Legion!
5:45 pm
Chase update:
I just spent the last few hours with Chase. He watched a movie for a little while, then after we turned it off, he started moving around all over. He can move his whole body now. It's amazing! He breathed on his own for a minute today. Though it was too fast, and he breathed over the ventilator once. He is tracking with his eyes consistently when he doesn't have the sedation in his system.
I just spent the last few hours with Chase. He watched a movie for a little while, then after we turned it off, he started moving around all over. He can move his whole body now. It's amazing! He breathed on his own for a minute today. Though it was too fast, and he breathed over the ventilator once. He is tracking with his eyes consistently when he doesn't have the sedation in his system.
15 year olds bodies are miraculous.
He does not like it when he is alone. His blood pressure rises. So we are back to taking shifts during the day and night.
We love that kid! He will forever be known as Super Chase or Chase the Awesome.
I told him if he was sick of being in that bed he should get strong and get out of it. Guess we will see what happens.
God is great. May he bless you and keep you until we meet again. We are legion!
He does not like it when he is alone. His blood pressure rises. So we are back to taking shifts during the day and night.
We love that kid! He will forever be known as Super Chase or Chase the Awesome.
I told him if he was sick of being in that bed he should get strong and get out of it. Guess we will see what happens.
God is great. May he bless you and keep you until we meet again. We are legion!
Day 20
Mon. July 7th
8:40 am
Chase Update:
Somehow in all of this no one mentioned to me he had a broken collar bone.
It's things like that and glass in his face, that really drives home how desperate it was when he came here.
His lungs look a LOT better today. They are still sick, but sooo much better. The nurses looked at each other today with wide eyes of awe! Praise The Lord, for hearing our legion of prayers. Thank you, Thank you for fighting with us.
He gets the spinal fluid drain out today. Hurray one more leash removed.
Chase is pretty much running in bed!
He is stronger on the left side, and his left leg is constantly moving all over the bed, his right side is about 2 days behind, but he is moves it ( mostly off the bed) He can move both arms, but he does nothing on command. Stubborn kid!
He keeps taking the heart rate monitor off his finger, kicking off his covers, and knocking off pillows. He is running his nurse for different reasons now. She tried to brush his teeth and he bit down and wouldn't let go until we promised to take it out. He has been yawning. His yawn is the most beautiful thing I have seen next to his eyes opening.
He is stronger on the left side, and his left leg is constantly moving all over the bed, his right side is about 2 days behind, but he is moves it ( mostly off the bed) He can move both arms, but he does nothing on command. Stubborn kid!
He keeps taking the heart rate monitor off his finger, kicking off his covers, and knocking off pillows. He is running his nurse for different reasons now. She tried to brush his teeth and he bit down and wouldn't let go until we promised to take it out. He has been yawning. His yawn is the most beautiful thing I have seen next to his eyes opening.
I am extremely emotional today. The miracles aren't small anymore, they are coming at us so fast, and in such quantity. It's a new kind of overwhelming.
Just over a week ago we were circled around his bed as a family and said a family prayer with Chase. There was an overwhelming possibility that it would be the last time we were all together as a family in this life.
We are watching him fight with the same same fervent desperation physically as we have all fought for him spiritually.
We are watching him fight with the same same fervent desperation physically as we have all fought for him spiritually.
So pray for Chase today. Ask The Lord to give him the courage to keep fighting, to defy the odds, statistics, and any time-line he is "supposed" to follow.
Pray he can speak. I know he can't with the trach, but he doesn't even try yet. I worry because of the bleed in that area of the brain.
Remember to praise God for taking my son from death's door, and giving him back to us. Praise and thank him for his overwhelming miracles. We always ask for these things according to God's will and in his own time.
May He bless you and keep you until we meet again We are Legion!
Pray he can speak. I know he can't with the trach, but he doesn't even try yet. I worry because of the bleed in that area of the brain.
Remember to praise God for taking my son from death's door, and giving him back to us. Praise and thank him for his overwhelming miracles. We always ask for these things according to God's will and in his own time.
May He bless you and keep you until we meet again We are Legion!
6::45 pm
**Video Links**
We want to share this miracle with you. This is what it looks like when he's trying to go to sleep.
I couldn't post his face when he was in the ICU, so here is the one I kept to myself.
We want to share this miracle with you. This is what it looks like when he's trying to go to sleep.
I couldn't post his face when he was in the ICU, so here is the one I kept to myself.
8:15 pm
Chase Update:
Chase had his drain for his spinal fluid removed today. They removed his Art line, and the PIC line from his left arm. He also got to sit in the chair today. I think He liked sitting up ( it has a strap to keep him in it) he isn't communicating with us anymore, that's hard for me. He barely even blinks, but he is still trying to run away in bed.
Chase had his drain for his spinal fluid removed today. They removed his Art line, and the PIC line from his left arm. He also got to sit in the chair today. I think He liked sitting up ( it has a strap to keep him in it) he isn't communicating with us anymore, that's hard for me. He barely even blinks, but he is still trying to run away in bed.
Tomorrow afternoon someone is coming from Craig hospital to evaluate Chase. I guess we will have a better idea of where we go from there after that.
I'm scared of the unknown, and I'm terrified of leaving the rest of my family and stepping the role of caregiver.
Tonight I am praying for the ability to communicate with chase. To know if he is in pain, or frustrated. I feel so helpless. I pray he is comforted, and continues to progress rapidly, and heal completely. This I ask in accordance to God's will.
Please join us in this prayer, and also pray for Justin and Erica. Bless them both with comfort, and bless justin with progress. May God bless you and keep you until we meet again. We are legion!
Please join us in this prayer, and also pray for Justin and Erica. Bless them both with comfort, and bless justin with progress. May God bless you and keep you until we meet again. We are legion!
Day 21
Tues. July 8th
2:00 am
Phil Update.
I feel like I need to let you know what happened after my last post tonight. I took a break with Alora and she and I agreed that I may have been a little hard on Chase's nurse. I tried to shake the feeling but couldn't. So I went back into chases room where the nurses were cleaning him and apologized. My actions were keeping me from feeling the spirit. Right now I really need gods help. I had to humble myself a bit but I got the job done. So the nurses left and Alora and eye sat down with chase. Alora got in his face and said she loved him. He answered! His 3 eye blinks were there. We asked him to say it again. He did! Alora was sobbing with joy! We asked him lots of questions and he answered every one. I won't go over most of them but the most important one was that he wanted his mom. I called Kami and she rushed over. He told her he loved her and we got to spend a few more minutes with our sweet teasing son. It was so beautiful. I missed him the last 3 days. Our prayers again have been answered and we had another miracle occur. I am laying here in bed sobbing. So overcome with joy and peace. Thank you so much for your prayers and faith. Please keep it up. It is so amazing the effect it is having on us. I know I not suppose to show this but I'm going to anyway.
I feel like I need to let you know what happened after my last post tonight. I took a break with Alora and she and I agreed that I may have been a little hard on Chase's nurse. I tried to shake the feeling but couldn't. So I went back into chases room where the nurses were cleaning him and apologized. My actions were keeping me from feeling the spirit. Right now I really need gods help. I had to humble myself a bit but I got the job done. So the nurses left and Alora and eye sat down with chase. Alora got in his face and said she loved him. He answered! His 3 eye blinks were there. We asked him to say it again. He did! Alora was sobbing with joy! We asked him lots of questions and he answered every one. I won't go over most of them but the most important one was that he wanted his mom. I called Kami and she rushed over. He told her he loved her and we got to spend a few more minutes with our sweet teasing son. It was so beautiful. I missed him the last 3 days. Our prayers again have been answered and we had another miracle occur. I am laying here in bed sobbing. So overcome with joy and peace. Thank you so much for your prayers and faith. Please keep it up. It is so amazing the effect it is having on us. I know I not suppose to show this but I'm going to anyway.
** The following link is a video of chase responding to our questions while blinks. This is towards the end of our conversation. He was much more intentional prior. He was asleep just minutes after this. He just stares and rarely blinks most of the time, so this was so exciting. **
5:30 am
Kami/Chase Update:
Yesterday was a hard day for me. Turns out it's just about as hard to watch my baby thrash around in bed mad and frustrated as it is to watch him lie there unconscious.
Yesterday was a hard day for me. Turns out it's just about as hard to watch my baby thrash around in bed mad and frustrated as it is to watch him lie there unconscious.
I was very emotional, and a little down. I wanted to rejoice with everyone, but I was too worried about everything. After a very comforting conversation with the charge nurse I took the opportunity to pray out-loud with chase.
I asked him to comfort Chase, and to help him understand the mission he has. To help his body be strong enough, to know he is loved. I asked him in his infinite mercy to please let him communicate with me, and ease my momma heart.
My shift ended at 11 pm and I was dead asleep when Phil called me.
He told me Chase was awake, and communicating and he wanted his Mom.
God is good, not because he granted my petition, but because he knew the state of my heart, and loved me enough to ease my worry.
My son told me he loved me, he told me he doesn't remember he last few days, and he isn't mad at me. He told me he doesn't have control of his arms and legs. We talked to him about being happy, and not getting discouraged. He teased his little sister and reveled in her kisses.
I am back on shift from 5-8 am and he's gone again. His legs thrashing, and the frustrated face doesn't upset me so much now. I know it's a process we have to go through.
He may not recognize me, but I comfort him.
Chase is breathing between 15-21 breaths a minute and only 10 of those are assisted. His oxygen is at 35%
One step closer to capping the trach.
This morning my prayers are that Chase can continue to heal at this rapid pace, that he can find peace and comfort in his body while still fighting to control it. I pray that the assessment with the Craig hospital rep goes well, if that is where The Lord wants us to go. I pray for patience- hourly! I pray for Justin's body to heal also, and all this I do in accordance to The Lord will and in his time frame.
Please join me in sending praises and petitions to heaven in Chases behalf. Thank you for your faithful, fervent, and frequent prayers.
May God bless you and keep you until we meet again. We are legion!
I asked him to comfort Chase, and to help him understand the mission he has. To help his body be strong enough, to know he is loved. I asked him in his infinite mercy to please let him communicate with me, and ease my momma heart.
My shift ended at 11 pm and I was dead asleep when Phil called me.
He told me Chase was awake, and communicating and he wanted his Mom.
God is good, not because he granted my petition, but because he knew the state of my heart, and loved me enough to ease my worry.
My son told me he loved me, he told me he doesn't remember he last few days, and he isn't mad at me. He told me he doesn't have control of his arms and legs. We talked to him about being happy, and not getting discouraged. He teased his little sister and reveled in her kisses.
I am back on shift from 5-8 am and he's gone again. His legs thrashing, and the frustrated face doesn't upset me so much now. I know it's a process we have to go through.
He may not recognize me, but I comfort him.
Chase is breathing between 15-21 breaths a minute and only 10 of those are assisted. His oxygen is at 35%
One step closer to capping the trach.
This morning my prayers are that Chase can continue to heal at this rapid pace, that he can find peace and comfort in his body while still fighting to control it. I pray that the assessment with the Craig hospital rep goes well, if that is where The Lord wants us to go. I pray for patience- hourly! I pray for Justin's body to heal also, and all this I do in accordance to The Lord will and in his time frame.
Please join me in sending praises and petitions to heaven in Chases behalf. Thank you for your faithful, fervent, and frequent prayers.
May God bless you and keep you until we meet again. We are legion!
6:30 pm
Chase Update:
Chase was a maniac today, legs and arms going a million miles an hour. He figured out how to move his head, and at one point he was lifting his butt up off the bed trying to scoot down after the nurse put a pillow there to keep him in place. His left side is moving much better today.
Chase was a maniac today, legs and arms going a million miles an hour. He figured out how to move his head, and at one point he was lifting his butt up off the bed trying to scoot down after the nurse put a pillow there to keep him in place. His left side is moving much better today.
He's an exhausting miracle.
We met with the representative at Craig hospital today. We have to be off the ventilator for 3-4 days before we are eligible, but we have been excepted.
Tomorrow is Chase's 16th birthday. Feel free to give him a birthday gift of cash. Lol I think he really wants a plane ride to Denver.
We are going to tell him he is getting chocolate cake flavored liquid in his feeding tube.
Seriously this will go down as one of the worst 16th birthdays of all time.
We are going to tell him he is getting chocolate cake flavored liquid in his feeding tube.
Seriously this will go down as one of the worst 16th birthdays of all time.
Please pray with us that Chase's astounding progress continues, that he can get off the ventilator as rapidly as he can in a healthy manner. Pray that he can be comforted and calm. Please pray for Justin and Erica, his symptom are more severe, they need our legion.
We pray for all these this according to The Lord's plan, and ask for the strength to accept his will.
Thank you for getting us to this point. May God bless you and keep you until we meet again. We are legion!
We pray for all these this according to The Lord's plan, and ask for the strength to accept his will.
Thank you for getting us to this point. May God bless you and keep you until we meet again. We are legion!
11:50pm
Phil Update:
Tonight I was thinking about Chase and our journey so far. I came to a realization. Chase is not going to die! I have been so worried about my son living that I kind of lost focus on it. His life will defiantly be different after all of this as our family's will be but my don is going to live. The next part is that Chase is annoying me!wow! Now that is normal Chase. It's true he has found a different way to do it but YAY chase! He has settled down a little with the thrashing around in his bed but he wants to constantly hold my hand. If he doesn't have it he thrashes a lot more. I love this kid. He is amazing! It's kind of fun to realize that in some ways I have some normalcy again. Kami and I have both come down with colds at the same time. Sad part is we still NEED to be with Chase around the clock so he will get it. I hope he can Handle it. Well love you all keep praying.
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